Re: Been there, done that. Now I say go away.
Re: Re: Been there, done that. Now I say go away. -- ssr Post Reply Top of thread Forum
Posted by:

10/05/2006, 05:20:25

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"Been to doctors countless times and still they give me the same ol things"

How about:

CT scan with contrast to look for kidney stones

Cystoscopy to look for kidney stones and strictures

The "alpha blocker" Uroatral
http://www.dshoskes.com/trials.html Randomized Placebo Controlled Trial of Alfuzosin (Uroxatral) in Patients with CPPS

Dedicated hernia surgeon (doctor that does nothing else but repair hernias) to palpate (feel and poke) to see if you have the kind of inguinal hernia that "refers" pain that feels like epididymitits or prostatitis.

"dynamic ultrasound" to look for hernias that are non-palpable (can't be felt by poking)
www.riainvision.com/invision/patientinfo/conditions/patinfo_cond_hernia_sub.asp
(you might have to go to Denver for the procedure, but it's not very expensive -- around $300, much cheaper than a CT scan, and more effective than a CT scan for finding nonpalpable inguinal hernias).

And other things. For example, see the speech by Dr. Shoskes (below), who is now at the Cleveland Clinic in Cleveland OH. I've never seen him, but I like how he's not devoted to a single idea. But note for as smart as he is, he never mentions hernia or kidney stones.

My theory is pelvic pain is NOT as mysterious as urologists claim -- I think for the huge majority of us (or maybe even for everyone) we have some old problem that just no one has tested for or considered.

Spy

northernspy@ verizon.net

DR. SHOSKES STATEMENT:

My own conclusions so far? Some men with CPPS have true infections: I find bacteria, I treat bacteria, I eliminate bacteria, symptoms dissappear, and sometimes later bacteria and symptoms come back. Some men with CPPS have bacteria that are commensals: I find bacteria, I treat bacteria, I eliminate bacteria, symptoms are unchanged. One man has radical prostatectomy + seminovesiculectomy and symptoms still
there. Another man goes on full immunosuppression following transplant and symptoms dissappear (case report accepted for publication this year in J Urol). Some men with CPPS have inflammation but no bacteria and have failed therapy with antibiotics and antifungals but have complete resolution of symptoms with anti-inflammatory therapy (cox-2 inhibitors, Prosta-Q). Some men with CPPS have nothing wrong with their
prostates. I find no bacteria. They insist they want to try
antibiotics+massage because of compelling but misguided hypotheses they may have read on the internet. It doesn't help, anti-inflammatories don't help. Physiotherapy, muscle relaxants (Flomax, Flexeril, Elavil) break the muscle spasm and solve the problem. Finally some men respond to none of these and other therapies and I have no idea what to do for them, other than to continue with research that explores both the basic
science and clinical features of this (these??) disorders.

Daniel Shoskes MD







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